Welcome To Our Website


This website has been created to provide a greater awareness of Dravet Syndrome,
which our daughter Vanessa has. We would like to provide as much information and support for all families who are affected by this syndrome.
We know how difficult life is, so we would like to share with you,  the story of our daughter Vanessa,who lives with Dravet Syndrome each day of her life.

Maggie and John, Melbourne, Australia

"We are on a mission, to help find a cure for this condition"


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Last Update 10 February, 2017 21:49

The information contained on this Website is for informational purposes only and is not intended to provide or replace medical advice.