» Home
7
  » Dravet Syndrome
6
  » Vanessa's Story
5
  » Photo & Video Gallery 4
  » Dravet links
3
  » Research/Studies
2
  » Organisations & Charities 1   » Dravet Family Conferences1   » Our Dravet Friends1   » Our Scrapbook1   » Events1   » Guest Book1   » Contact Us1   » Thank You Page1

 

 

Welcome To Our Website

2010 Family Conference

August 26th – August 29th 2010
Hyatt Regency Greenwich
1800 East Putnam Avenue
Old Greenwich, CT 06870
United States

For more details contact
www.idea-league.org

 

updates18th March 2010

 

This website has been created to provide a greater awareness of Dravet Syndrome,
which our daughter Vanessa has. We would like to provide as much information and support for all families who are affected by this syndrome.
We know how difficult life is, so we would like to share with you,  the story of our daughter Vanessa,who lives with Dravet Syndrome each day of her life.

Maggie and John, Melbourne, Australia

"We are on a mission, to help find a cure for this condition"

Your Visitor
Website Hit Counter

Modifications & Design managed by Merlino Nominees Pty Ltd

This site is © Copyright www.dravetsyndrome.com All Rights Reserved

Last Update 28 May, 2010 21:46

The information contained on this Website is for informational purposes only and is not intended to provide or replace medical advice.